Alpha Thalassemia,  Fibromyalgia

Invisible 🙈🚷 Disability

Can we have a real talk for a moment??


For the past 41 years, they have been a part of my life. We go everywhere together, we’ve seen good times, bad times, have memories that shall never be mentioned again AND they support me… literally and figuratively … through so much.

Over the past few years, our friendship has changed 😬. They’re moody easily agitated and aggravated. Each day I don’t know if I will get Jekyll or Mr. Hyde or even if they will bring me to tears😢. I no longer possess the confidence that they will carry me through each situation 💯 percent of the time.

Some days I simply let them rest in bed for they are weary from other day’s work, some days we start strong and end weak, other days I have to let someone else lead, drive or even assist them by resting them in a wheelchair.

This is not the life I planned for them. But this is NOT THE FINAL CHAPTER of our lives either.

So I will fight to keep whatever strength we have, I will advocate for them as they have supported me and I WILL NOT talk bad or allow anyone else to belittle them.

I have an #invisibledisability it’s called #FIBROMYALGIA… I also have #ALPHATHALASSEMIA. Together they bring #pain #weakness #tiredness #fatigue to this part of my body.

My legs are NOT invisible and neither is
– the slow pace walk they now take
– the twitching or jerking they sporadically do
– the continuous stand/sitting/stretching battle they display OR
– the constant treatment of massage, ball-rolling, light slapping, or punching I give them

My Invisible Disability is very VISIBLE!

#realtalk #fibrofighter #fibromyalgiaawareness #thalassemia #alphathalessemiawarrior #spoonie #spoonielifestyle
#mylifeisatestimony #thefibromyalgiamonologues


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